Tag Archives: Self-Stigma

“I’m Just Tired”: The Truth

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

I say to you I’m tired. And I am. I’m tired of life. I’m tired of my head. I’m tired of everything I cannot change. I’m tired of fighting.

I say I’m tired. And I am. But I’m hiding behind it. I’m not sure what I feel. I don’t have the capacity to know or understand my feelings so I’m tired will have to do as I’m too tired to work it out.

I’m tired. I’m exhausted. My body and mind don’t want to work. My head is thumping. My limbs are aching. Sleep doesn’t help. I want to be in bed. I want to give up. I want to hide away.

I’m tired. Of being a burden. Of being a failure. Of being a no good human being. Of being the worst of everything. Of always being the one who doesn’t know how to be OK.

I’m tired and I want to go to bed. But I don’t want to ever wake up. I don’t want to face the world anymore. I don’t want to feel anymore. I don’t want to exist anymore.

So yes I’m tired but it’s so much more.

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Chaotic Cancer: A Family Member’s View: Diagnosis

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

I introduced this series of posts in this blog post โžก๏ธ Chaotic Cancer: A Family Memberโ€™s View: Intro. This post is about my mum’s diagnosis of cancer and some information and thoughts surrounding that.

My mum’s cancer was an incidental finding. We had no suspicions that she may have cancer. There were no obvious signs (though looking back we have picked some out). It was far off the radar. I don’t know if this made it easier or harder to deal with. I have no prior experience of anyone I know getting cancer. But it was tough.

Mum went into hospital before Christmas with an inflamed gallbladder. She had antibiotics and came home. About six weeks later at the beginning of February 2021 she had a reoccurrence of the inflamed gallbladder and so they decided to remove it in an emergency surgery. It was then that they found something. On her liver were lesions. Tumours. They took biopsies. Then we had to wait for the confirmation of cancer. They knew it was. It couldn’t be anything else. But we didn’t. So I grasped that tiny bit of hope. Hung on to it tight.

Within a week she was back for the results. It was, surprise, surprise, cancer. A rare one. Slow growing. Treatable. Neuroendocrine cancer. That’s what they told us then. There was still hope. But I dissolved. That day I sobbed for an hour. Mum was meant to be isolating after exposure to covid while on the ward but screw that, I hugged her. Then the guilt set in.

To understand this guilt means explaining that in my therapy I’d been working to stop self harming. I had been using as an OCD type compulsion to stop people getting ill. I’d been told it had no effect on them not getting ill. Then this happened. I’d made my mum get cancer. I even told my dad it was my fault. The guilt overtook me. I had ended the therapy by then ahead of a new group but all I wanted was to email the psychologist and tell her she’d made me give my mum cancer. Yup, totally irrational. Or that’s what I’m told. I bounce back and forwards still.

With the diagnosis came a lot of emotions. Emotions I didn’t understand. Emotions that were set to overwhelm me along with other people’s. So I pushed mine down. From the day after the diagnosis I didn’t cry for a long while. I threw myself into the practical. I didn’t feel anything. I totally blotted out my feelings. I had enough to overwhelm me with other people’s emotions. Those had a name though as people could tell me them. My own I can’t name.

So diagnosis was stage one of the whole cancer chaos. The start of the chaotic world it brings. And beginning it all in the midst of a pandemic has brought challenges as well. Mum was on her own for the diagnosis as at our hospital appointments have to be attended alone. I think that has hurt her a lot. I don’t know though.

So from diagnosis comes many more tests and appointments. These I will discuss in another blog post. I think I thought diagnosis would be the hardest part. How wrong I’ve been.

If you want to share any experiences, thoughts or resources feel free to use the comments or my Twitter, Facebook or Instagram accounts linked to this blog.

When Emotions Overwhelm

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

Last week after a while of not feeling anything or pushing emotions down I was suddenly overwhelmed with them. It is an experience I know many people with a mental illness feel at times, especially those who have a diagnosis of Borderline Personality Disorder (BPD).

I don’t understand my emotions most of the time. Identifying them is an extremely difficult thing for me. When they overwhelm me this is harder to do and harder to deal with as well. People will ask what’s wrong or what you’re feeling and not being able to explain it is so hard to deal with and seems to add something into the emotions that makes it all the worse. I feel I just want to be a “normal” person for a while.

Those with a BPD diagnosis find emotions are heightened. They are often described as being emotionally like third degree burns victims without an emotional skin. It’s like touching wounds when we feel emotions. The pain of them is strong and this can be felt physically in the body. And by god is it painful at the extremes. When most people would have a small emotional response, ours tends to be more intense or bigger. Therefore when a person without the diagnosis has an event that causes them extreme emotional pain, well for those who have a diagnosis of BPD it is just unbearable.

When the emotions overwhelmed me I just wanted to tear my skin off. I wanted to hurt myself to an extreme extent. I wanted to escape it all. Death felt like the best idea but I felt trapped as it wasn’t an option. This added to the distress. The hatred for myself is strong. It’s always strong but in that moment it was extreme. It was unbearable and I could not even work out what I was feeling.

This happens more often than people realise. A lot of the time I just hide away. My friends cope with a lot. I feel sorry for them. I hate what I do to them. They deserve better. I try my hardest to not inflict myself on them but in the moment it’s harder. This isn’t the healthiest way to cope.

I don’t have much advice for coping. Dialectical Behavioural Therapy (DBT) offers some skills for dealing with distress. These include the TIPP skills and STOP skills that are detailed in the images below. However it can be hard to remember to do this when the emotions are so high. It’s like they are blinding. It could be useful to let someone close to you know about the skills so they can remind you of them.

If you have any other tips for coping with overwhelming emotions then feel free to share in the comments or on Twitter, Facebook or Instagram.

Being Invalidated

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

“To invalidate means to cancel something or make it void, as if it never happened. In invalidate you see the word valid which means true or correct. When you invalidate something you are making it less true, less official, or less correct.” (vocabulary.com, March 2021).

The meaning above can be applied to things you experience. It can be caused by other people and events. It can make you question your thoughts, feelings, emotions, experiences and reactions. It can make you feel awful. And people sometimes don’t even realise they are doing this to you.

When you tell someone that what they feel isn’t justified or to just stop feeling that way, then you are invalidating the way they feel. You are telling them what they are feeling is not true and not correct. Yes, you may not have felt that way in that situation but everyone is different and that doesn’t mean that what that person is feeling is invalid.

It’s important we think before we speak. It’s what might feel like silly things that can have an effect on other people and cause them to feel invalidated and it can start when we are children. What we are saying may to us sound reassuring but it ccam invalidate the child. Saying to a child who is nervous about an exam that they shouldn’t be is invalidating. Instead saying you understand why they feel that way but you feel like they are well prepared so it should go well is acknowledging their feelings as valid while reassuring at the same time.

Some mental health professionals could also do with understanding the power of invalidation. Telling someone that what they are experiencing is minimal or not that bad can have lasting effects on everyone and especially those with a mental illness. It can cause them to deteriorate further. On my write ups from the psychiatrist appointments it would often say my self harm was superficial and it would make me try to cause myself more harm as I felt they weren’t taking me seriously. I’ve also heard of people with eating disorders who are told they are not thin enough being made sicker.

I know that although having a diagnosis can be a burden I felt it a validation for what I was/am experiencing. It made me feel that someone could see that something was wrong and I needed help. However this means professionals need to be careful about removing diagnoses from patients as it can add to invalidation. You are taking away the validation you gave them. There needs to be a conversation and careful explanation.

It is possible also to invalidate yourself as well. This is harder to stop doing, I know I do it a lot. It’s important for us to try and allow ourselves to experience our feelings and acknowledge them. This is easier said than done though.

So when speaking to anyone try to consider their feelings and not cancelling them out. We all need to think of how our words and actions impact on others.

The Return To Normal

In the UK we are starting to hear plans of how things are getting better and back to some kind of “normal”. This has brought up many feelings for myself and others. Here I thought I’d explore some of mine.

In all honesty the thought of going back to how things were before the pandemic and lockdown feels scary. I didn’t particularly like it then and I’ve become more of a home body now like I have done in the past. I don’t want to go out other than to walk the dog. I like being at home. I like being able to do the things I want to at home. I don’t want to go back in to shops that are crowded. I don’t want to have to go to places that I don’t know. I don’t want to socialise. I’ve become comfortable with this life.

I really want to keep the two metre rule in place. I feel its helped us to learn a little about personal space, something so many people weren’t good at before. I don’t want to feel people closing in around me. Part of this fear will also be because we’ve not been allowed to be near others so we’ve become hyper aware of avoiding people and it will be strange to go back to how it was before.

I also have quite liked the lack of expectations on me. I’ve not been expected to be sociable which I struggle with normally. I miss my friends massively, please don’t get me wrong, and I want to hug them but I’m terrified of the social interactions returning. I’m scared I’m not going to manage it at all. I’m scared I’m going to screw up all my friendships again, like I have in the past. I liked having a stress free birthday and Christmas.

Travelling is going to be hard as well. I struggled with public transport before the pandemic and I feel that any progress I was making has been torn away. I don’t feel I could use public transport for some time.

I’m also terrified of just the thought of people doing normal things. What if things aren’t as OK as it seems? What if people I love become ill still? I’m scared of losing people still. How do we know it’s OK?

So those are a few of my worries. I currently have to fight off the panic attacks linked to thoughts of things becoming “normal”. And will normal actually look the same as before? I’m not great with any change but this all feels so big. I’m scared and overwhelmed with it. I’m trying to just go by each reduction and not try to think too far ahead but it’s hard not to let things snowball in my mind.

I hope things will get easier for all of us. If you wish to share your thoughts on lockdown easing and any tips you think may be useful use the comments below or Twitter, Facebook or Instagram.

Breaking Up A Toxic Relationship

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

The fourteenth of February is a day everyone remembers and relates to their relationship with their partner. I’m no different except for me it marks the day I broke up my relationship with my ex, let’s call him J. It’s a bittersweet day and complicated in so many ways by the mix of thoughts in my mind.

My relationship with J was not a good one. We were introduced by a mutual friend. He was five years older, which doesn’t sound a lot but as I was seventeen and he was twenty two it did feel quite big. We had many laughs when we first met. To say there wasn’t a connection would be wrong, however much it now pains me. We quickly became an item and that’s when the issues started.

He very much wanted our relationship to become physical straight away. I didn’t due to some past issues. I tried explaining and he seemed understanding when we were talking via text. In person it was quite different. He made me many promises. Within a week they were broken and so was I.

I should of left him then. It sounds so easy so early on in a relationship. But I’d told him things I’d told noone else and boy did he know how to use that to get his way. And if that didn’t work then humiliation and force were his tools.

Now he wasn’t all bad. It sounds like I’m defending him but honestly there were things about him I liked and still do. He could be charming. He showed me a vulnerable side that liked to do cross-stitch which his nan had taught him. He loved his nephew. He could be funny. These things made me want to be with him. They made me feel lucky. Especially when he chose to open up about things to me. Maybe it was all manipulation but some at least felt genuine.

However there were areas where we clashed. Areas where he forced his will on me. Where he took away my choices. He told me I made him do this. I forced him to force me. Do I believe it? Yes, it still feels like I’m to blame a lot of the time. There may be small doubts but they are often erased.

During our time together my self confidence, what little I had as I was already mentally unwell at the time, was eroded. Any form of self respect was gone. He terrified me but I needed him. When he tried to persuade my friends to sleep with him I knew it was my fault. I’d pushed him to it. They showed me his messages. I still thought it was ok.

Eventually nine months in I had a sudden burst of feeling I couldn’t do this relationship anymore and when it came out he’d been successful in one of his conquests with another woman I saw it as an excuse to end the relationship. So on the fourteenth of February I ended it. I couldn’t do it face to face through fear. But I did it. I got all sorts of threats from him. I knew I would and I had my doubts over what I’d done. Noone else would ever love me, right?

I wish I could say he was out of my life after then. He wasn’t. He reappeared a number of times in different ways. He treated me in different ways from deep caring to painful incidents. He humiliated me many times and forced me to put myself in his control to avoid a friend getting hurt. It would be my fault if they did. He has periodically turned up over the last eleven years. I have very mixed thoughts about him.

So why have I written this piece? Because I know deep down this was not a good relationship. It hurt me a lot whether that was my fault or his remains to be seen though many say it was him. But I did end it. Somehow I found the words to say it was over. But it wasn’t a simple break up. And I think with many toxic relationships that is the same. The idea people can just walk away from these relationships is wrong. So much is tied up in them. Many thoughts go through your head. So if a relationship isn’t looking right please don’t think it’s simple for one person to leave the other. There is much more to it and sometimes one partner won’t let it go and can be threatening and manipulative. Please understand this.

For help and support with similar issues then you can check out Refuge in the UK. I’m sure there are similar charities around the world too.

N.B. Some people have called my relationship abusive. As you may have noticed I chose the term toxic. Maybe it was abusive. At times I say that. But my head hasn’t got around this relationship entirely. I know I’d call it abusive if anyone else experienced what I had.

I Don’t Have The Words

Finding words is difficult at a lot of different times and especially when struggling mentally. This is something at the moment that I’m finding is the case so we’ll see how this post goes. Good luckย  to all reading.

Words come from many parts of ourselves. All our senses feed together into the brain and expect it to spit out the words that we need but sometimes it feels like it’s letting us down when we need it most; to tell others how we are feeling. This is definitely something I feel happens. I want to express how I’m feeling but no words come, especially if it’s an emotion. It’s frustrating as people say I’m clever and good at writing but I just don’t have the words for this part of me.

I know I’m not alone in struggling to find words for emotions and it is particularly something that can be associated with Borderline Personality Disorder (BPD) and part of the therapy for this (Dialectical Behaviour Therapy (DBT)) involves a section on identifying emotions. However this can still be difficult as it requires us to be able to find words for the sensations in our bodies and the events leading up to them. This isn’t always easy and I often can only use the words good or bad to describe the sensations.

Not being able to find my words leads to many difficult situations. I don’t feel I can ask for help when I don’t know how to describe what is wrong. I’m terrified of being misunderstood and it happens frequently when I do try to find my words. However it is difficult to sort these misunderstandings as I don’t have the correct words to make people understand how I’ve been misinterpreted. It makes for many difficult times. Often I will just allow myself to be misunderstood or I won’t try to explain in the first place.

Writing can sometimes be easier than actually talking. It often gives me a little more time to compose my thoughts and feelings into words. It’s often why I find phonecalls stressful and avoid them at all costs. This hasn’t been helped by many things during the pandemic being moved to phone appointments. Even face to face is easier as the other person has my body language to help them understand me.

Having a difficulty with finding words has effected my confidence in social and professional situations. I’m constantly in fear of being taken the wrong way or accidentally offending someone. It makes everything more stressful and I’d rather avoid situations than try and explain to someone my difficulties.

I’m still looking to find ways to combat my difficulty with finding words and would love to hear if you have found any. Feel free to share any ideas or your thoughts on the subject in the comments or on Twitter, Facebook or Instagram.

Therapy 2021: Session 5

Date of session: 02/02/2021

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

Today was my last session of individual therapy. This will be more of a thoughts on things post as there was not much content to the session to be shared. The main part of the therapy today was to do a screening for joining a trauma information group in March.

With the end suddenly happening (it was only mentioned last session, last week) I feel abandoned. I feel I have no support. I feel alone. They say phone the duty worker or crisis team. These are options I can’t do due to my home situation and the anxiety that means I don’t feel able to talk easily to staff I don’t know. Also I know that someone who mans the duty phone is someone I put in a complaint about and so I was removed from her care. She has since blatantly ignored me when I offered a hello when I saw her in the building of my community mental health team and turned her head away from me. She has also said some things for which the complaint was made. I’m terrified it would be her that answers. I have lost so much support in the last year.

I know I’m lucky to move onto this group but it’s a stop gap. I’m apparently not safe to do online trauma therapy so this is a trauma information group. This will just give us eight weeks of generic information about skills. For this I have to be low risk and stable. So that is what has been said while I’m not safe to do the one to one. I find this confusing.

I’ve not self harmed for seven weeks. I hate myself for this. The anxiety is high. But I’m expected to just be OK. That’s how it feels at least. I just want to harm again. I feel it wouldn’t matter anymore. No one would check on it. And so what if I go to far. It wouldn’t matter.

I know I sound pathetic and I probably am. But I’m angry and upset. Maybe I should of left this post for another day but I needed these thoughts out before I explode at someone. Especially as I’ve been told by someone else something that has annoyed me and left me feeling even more left out and alone. It’s left me with suicidal thoughts (I’m safe and won’t act on them). I’m tired of being made to fight so hard.

I apologise for being self pitying. We shall see how the trauma information group goes when it starts in March. I’m unsure if I will record this or not. For now this is the end of therapy.

Therapy 2021: Session 4

Date of session: 26/01/2021

Please be aware that some of the content may be triggering. Please take care ๐Ÿ’š

Before this session I had homework to do. I left it until the last minute due to feeling ill and tired most of the time. I also knew it would be hard as it involved identifying emotions at some level. This is an area I find hard and frustrating. I also had to build a new safe place to use to do this. This I resented. I did it the night before.

At the start of the session, as always, I was asked how I’d been over the last week. I said about the pain and tiredness. She asked how I’d been doing with the self harm and I replied I still hadn’t self harmed since before Christmas. She was pleased with this. I am less so at this time. She also asked how my dissociation had been which I always find hard to answer as I’m not always aware when I’m dissociating. I explained a couple of things and she said it sounded more like acting mindlessly rather than dissociating. I’ll agree to disagree here but hey ho.

We then moved on to look at the new safe place I had created and went through all its sections and the different senses that related to it. I won’t discuss my safe place at this time as I’m not sure it is a wise thing right now. She was happy with the place I’d created and the use of senses. She then asked about emotions and feelings in the body. This is where I had difficulty and this made me feel uncomfortable and annoyed (anger and annoyance I can identify, though not always accurately in others). She now wants me to keep going through the safe place when I’m not stressed to see how it reduces feelings and calms me. Then move on to practicing it when I think of a mildly irritating scenario. At the moment I’m in a constant state of anxiety so we will see how we go.

After this she wanted to discuss next steps. She had, had her supervision meeting and discussed about doing further trauma work with me now I wasn’t self harming (a prerequisite I had been given). It was now decided it was still to unsafe to do the trauma work online due to my high score on the DES (Dissociative Experience Scale) as she wasn’t in the same room as me. I understand this to an extent but it feels like I have to somehow get better so I’m the right level of ill. I can’t be too ill, but I can’t be too well.

The above led me to having to make a decision. We could do another couple of sessions winding down and then leave it until face to face was an option or I can join a trauma information group in March for eight weeks and next weeks session would be my last individual session. I explained I would have to consider the timing of the session and how it would impact on my family as its a two hour course. I had some less than pleasant comments in response that left me incredibly upset, including “the group will go ahead with or without you” and “you’re lucky to be offered this so soon”. I don’t dispute how lucky I am, I just needed to consult others as I’m not the only person it will effect. She knows of the difficulties at home. I was told to just be assertive.

After the session I was in tears. I felt some of the comments were unfair. I had not turned it down flat, just explained that I wasn’t sure I could do it due to the issues in my family. But then I was an awful person. I feel now something that may be paranoia but also may not be, which is that this has all been to leave me without support and the world knowing how awful I am. I’m still not feeling great in regard to this. I have considered emailing the psychologist but I’m also scared too. It has triggered a lot of feelings of fear of abandonment.

I have managed to arrange that I will be able to attend the group of the offer is still open. We will see what happens next week.

Lockdown 3.0

This is not a post I thought I’d write. Actually more hoped I wouldn’t write. The UK is back in lockdown. Our 3rd. I won’t go into the politics of it, that’s been covered a lot.

With each lockdown there has been new challenges to get through. I’ve found my tolerance for other people has deteriorated dramatically. I’ve felt more and more alone each time. And my support system feels more and more depleted each time.

With regards to other people, they make me angry. Anger is an emotion I struggle to cope with so it’s an awful place to be in my head. I want to scream and shout at the selfish people who keep putting us back in this place of lockdown because they can’t do as they’re told. I want to shout at those who get too close not only because they shouldn’t, but also because it scares me. People scare me enough as it is. The pandemic and lockdown just add to this.

Loneliness is another aspect of lockdown that gets to me. I can message people but it still doesn’t feel enough. I live with people but sometimes that makes me feel lonelier as they don’t understand what I’m dealing with inside. I don’t like a lot of physical contact but there are some people I just want to hug. I miss them so much. The thing is I’m also finding myself getting anxious about talking to people. Zoom groups are feeling harder than ever and I feel so detached.

The reduction in support is also feeling more of an issue. My contact with mental health services has been depleted and I’m struggling. I feel like I have nowhere to turn at the moment and more things I use to keep me well ish are disappearing.

So yep lockdown 3.0 is set to be a challenge. I’m trying so hard. I’m looking at skills I can use from DBT to help me get through. I just need to get through it. The thing is I’m a paradox and the thought of “normal” scares me too.

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