Tag Archives: distractions

Chaotic Cancer: A Family Member’s View: Intro

Please be aware that some of the content may be triggering. Please take care πŸ’š

About six weeks ago (or longer, the days are all merging) my world was hit by the news that my mum has cancer. It’s something I’ve been dealing with on top of coping with my mental illness. Therefore I thought I’d use my blog as a way of recording how I cope (or not) with everything that comes from living with someone with cancer. And not just anyone living with someone with cancer but someone with a prior mental illness. I know bits will overlap with everyone who supports someone with cancer but there are bits that I think I’m finding harder due to my diagnosis. Maybe not… But this will be my way to explore it.

I’m planning to set this up on it’s own page of my blog so it will be together with other information or support as well. And it will all be in one place.

My plan is that I will be as honest as I can be. That I will look at the good, the bad and the ugly. This may mean there is triggering topics discussed so please be careful. As always I will put a trigger warning at the top.

So post one will hopefully be up shortly (once I’ve written it) but I don’t think I will keep these posts to a schedule as life is already chaotic. I also still want to write about other areas of mental health and illness too, this is just an add on.

As always if you want to share or ask questions feel free to use the comments or my Twitter, Facebook or Instagram accounts.

When Emotions Overwhelm

Please be aware that some of the content may be triggering. Please take care πŸ’š

Last week after a while of not feeling anything or pushing emotions down I was suddenly overwhelmed with them. It is an experience I know many people with a mental illness feel at times, especially those who have a diagnosis of Borderline Personality Disorder (BPD).

I don’t understand my emotions most of the time. Identifying them is an extremely difficult thing for me. When they overwhelm me this is harder to do and harder to deal with as well. People will ask what’s wrong or what you’re feeling and not being able to explain it is so hard to deal with and seems to add something into the emotions that makes it all the worse. I feel I just want to be a “normal” person for a while.

Those with a BPD diagnosis find emotions are heightened. They are often described as being emotionally like third degree burns victims without an emotional skin. It’s like touching wounds when we feel emotions. The pain of them is strong and this can be felt physically in the body. And by god is it painful at the extremes. When most people would have a small emotional response, ours tends to be more intense or bigger. Therefore when a person without the diagnosis has an event that causes them extreme emotional pain, well for those who have a diagnosis of BPD it is just unbearable.

When the emotions overwhelmed me I just wanted to tear my skin off. I wanted to hurt myself to an extreme extent. I wanted to escape it all. Death felt like the best idea but I felt trapped as it wasn’t an option. This added to the distress. The hatred for myself is strong. It’s always strong but in that moment it was extreme. It was unbearable and I could not even work out what I was feeling.

This happens more often than people realise. A lot of the time I just hide away. My friends cope with a lot. I feel sorry for them. I hate what I do to them. They deserve better. I try my hardest to not inflict myself on them but in the moment it’s harder. This isn’t the healthiest way to cope.

I don’t have much advice for coping. Dialectical Behavioural Therapy (DBT) offers some skills for dealing with distress. These include the TIPP skills and STOP skills that are detailed in the images below. However it can be hard to remember to do this when the emotions are so high. It’s like they are blinding. It could be useful to let someone close to you know about the skills so they can remind you of them.

If you have any other tips for coping with overwhelming emotions then feel free to share in the comments or on Twitter, Facebook or Instagram.

Therapy 2021: Session 5

Date of session: 02/02/2021

Please be aware that some of the content may be triggering. Please take care πŸ’š

Today was my last session of individual therapy. This will be more of a thoughts on things post as there was not much content to the session to be shared. The main part of the therapy today was to do a screening for joining a trauma information group in March.

With the end suddenly happening (it was only mentioned last session, last week) I feel abandoned. I feel I have no support. I feel alone. They say phone the duty worker or crisis team. These are options I can’t do due to my home situation and the anxiety that means I don’t feel able to talk easily to staff I don’t know. Also I know that someone who mans the duty phone is someone I put in a complaint about and so I was removed from her care. She has since blatantly ignored me when I offered a hello when I saw her in the building of my community mental health team and turned her head away from me. She has also said some things for which the complaint was made. I’m terrified it would be her that answers. I have lost so much support in the last year.

I know I’m lucky to move onto this group but it’s a stop gap. I’m apparently not safe to do online trauma therapy so this is a trauma information group. This will just give us eight weeks of generic information about skills. For this I have to be low risk and stable. So that is what has been said while I’m not safe to do the one to one. I find this confusing.

I’ve not self harmed for seven weeks. I hate myself for this. The anxiety is high. But I’m expected to just be OK. That’s how it feels at least. I just want to harm again. I feel it wouldn’t matter anymore. No one would check on it. And so what if I go to far. It wouldn’t matter.

I know I sound pathetic and I probably am. But I’m angry and upset. Maybe I should of left this post for another day but I needed these thoughts out before I explode at someone. Especially as I’ve been told by someone else something that has annoyed me and left me feeling even more left out and alone. It’s left me with suicidal thoughts (I’m safe and won’t act on them). I’m tired of being made to fight so hard.

I apologise for being self pitying. We shall see how the trauma information group goes when it starts in March. I’m unsure if I will record this or not. For now this is the end of therapy.

Therapy 2021: Session 4

Date of session: 26/01/2021

Please be aware that some of the content may be triggering. Please take care πŸ’š

Before this session I had homework to do. I left it until the last minute due to feeling ill and tired most of the time. I also knew it would be hard as it involved identifying emotions at some level. This is an area I find hard and frustrating. I also had to build a new safe place to use to do this. This I resented. I did it the night before.

At the start of the session, as always, I was asked how I’d been over the last week. I said about the pain and tiredness. She asked how I’d been doing with the self harm and I replied I still hadn’t self harmed since before Christmas. She was pleased with this. I am less so at this time. She also asked how my dissociation had been which I always find hard to answer as I’m not always aware when I’m dissociating. I explained a couple of things and she said it sounded more like acting mindlessly rather than dissociating. I’ll agree to disagree here but hey ho.

We then moved on to look at the new safe place I had created and went through all its sections and the different senses that related to it. I won’t discuss my safe place at this time as I’m not sure it is a wise thing right now. She was happy with the place I’d created and the use of senses. She then asked about emotions and feelings in the body. This is where I had difficulty and this made me feel uncomfortable and annoyed (anger and annoyance I can identify, though not always accurately in others). She now wants me to keep going through the safe place when I’m not stressed to see how it reduces feelings and calms me. Then move on to practicing it when I think of a mildly irritating scenario. At the moment I’m in a constant state of anxiety so we will see how we go.

After this she wanted to discuss next steps. She had, had her supervision meeting and discussed about doing further trauma work with me now I wasn’t self harming (a prerequisite I had been given). It was now decided it was still to unsafe to do the trauma work online due to my high score on the DES (Dissociative Experience Scale) as she wasn’t in the same room as me. I understand this to an extent but it feels like I have to somehow get better so I’m the right level of ill. I can’t be too ill, but I can’t be too well.

The above led me to having to make a decision. We could do another couple of sessions winding down and then leave it until face to face was an option or I can join a trauma information group in March for eight weeks and next weeks session would be my last individual session. I explained I would have to consider the timing of the session and how it would impact on my family as its a two hour course. I had some less than pleasant comments in response that left me incredibly upset, including “the group will go ahead with or without you” and “you’re lucky to be offered this so soon”. I don’t dispute how lucky I am, I just needed to consult others as I’m not the only person it will effect. She knows of the difficulties at home. I was told to just be assertive.

After the session I was in tears. I felt some of the comments were unfair. I had not turned it down flat, just explained that I wasn’t sure I could do it due to the issues in my family. But then I was an awful person. I feel now something that may be paranoia but also may not be, which is that this has all been to leave me without support and the world knowing how awful I am. I’m still not feeling great in regard to this. I have considered emailing the psychologist but I’m also scared too. It has triggered a lot of feelings of fear of abandonment.

I have managed to arrange that I will be able to attend the group of the offer is still open. We will see what happens next week.

Winter Self Care In Lockdown

I know we are quite a bit into winter but as I’m in the UK we all know winter is going to be here forever more (yes I’m exaggerating). So I thought I’d put some winter self care together and that which is appropriate for a lockdown.

1. A warm drink

Simple maybe? Maybe not. The thought of making a hot drink for some feels insurmountable when times are hard but if you can it may make you feel better. Even just an ordinary soft drink is good as well. I’m not one for hot drinks myself so understand if you don’t want one.

2. Snuggle in some blankets

If all you can do is keep yourself warm and comfortable it’s still self care. It’s nothing to feel guilty about, your comfort is important. Enjoy the blankets.

3. Watch something you’ve wanted to

Whether it’s a boxset binge or a film you’ve been meaning to watch, make the most of the cold weather and the instruction to stay indoors and watch it. Remember you can always pause something if you can’t concentrate for long. I often watch episodes or films in bits as I can’t keep my mind on things for long.

4. Something creative

If you feel up to it then what about something creative. Drawing, modelling, painting. I’m currently doing a painting by number that really helps me with my anxiety. Even a jigsaw or lego is creative. Do what you enjoy. It doesn’t have to be perfect or put on display.

5. Reading

I read quite a lot but I know it’s not always easy so there is the option of listening to an audio book if you feel that would work better.

6. Nap

Naps are amazing. Have no guilt in giving your body what it needs.

So those are a few ideas from me. Obviously there are lots of different things that you can do. Do what is good for you. Remember self care isn’t selfish. It’s something we all need.

Therapy 2021: Session 3

Date of session: 19/01/2021

Please be aware that some of the content may be triggering. Please take care πŸ’š

Since my last session I have felt incredibly unwell mentally. My anxiety has been through the roof, especially with regard to the homework she set, and I’ve had many flashbacks. I’ve not slept particularly well and felt very sick. This is where we started the session.

My homework had been to wish for my psychologist to get ill everyday. This made me feel particularly ill. It was to prove to me that I have no control over people getting ill. And I understand that and rationally know its true but I’m not there on an emotional level yet. The psychologist had not been ill, or at least she told me she hadn’t, and tried to reassure me. It had also brought up ideas that maybe this had been to prove how evil I am as well. The psychologist started to think maybe this had been a step too far too soon. We may go back to this at a later date.

The main point of today’s session was to create a safe place for me to go to mentally in my mind. This didn’t go particularly well and I think the psychologist saw this. I do feel I should have been guided better with my choice as its far from appropriate now I look back at it and at the end of the session it was suggested I might try somewhere else that is calmer. I feel because I was being asked to use emotions to find the safe place I misread it all. I find emotions so hard to place. I was totally lost with it.

I’m trying so hard in these sessions. I’m continuing not to self harm. I know it’s going to be more difficult before it gets better but at the moment I’m struggling. I feel so alone. I feel noone can understand this. Feeling constantly on the edge of panic is exhausting. I’m so tired right now.

Lockdown 3.0

This is not a post I thought I’d write. Actually more hoped I wouldn’t write. The UK is back in lockdown. Our 3rd. I won’t go into the politics of it, that’s been covered a lot.

With each lockdown there has been new challenges to get through. I’ve found my tolerance for other people has deteriorated dramatically. I’ve felt more and more alone each time. And my support system feels more and more depleted each time.

With regards to other people, they make me angry. Anger is an emotion I struggle to cope with so it’s an awful place to be in my head. I want to scream and shout at the selfish people who keep putting us back in this place of lockdown because they can’t do as they’re told. I want to shout at those who get too close not only because they shouldn’t, but also because it scares me. People scare me enough as it is. The pandemic and lockdown just add to this.

Loneliness is another aspect of lockdown that gets to me. I can message people but it still doesn’t feel enough. I live with people but sometimes that makes me feel lonelier as they don’t understand what I’m dealing with inside. I don’t like a lot of physical contact but there are some people I just want to hug. I miss them so much. The thing is I’m also finding myself getting anxious about talking to people. Zoom groups are feeling harder than ever and I feel so detached.

The reduction in support is also feeling more of an issue. My contact with mental health services has been depleted and I’m struggling. I feel like I have nowhere to turn at the moment and more things I use to keep me well ish are disappearing.

So yep lockdown 3.0 is set to be a challenge. I’m trying so hard. I’m looking at skills I can use from DBT to help me get through. I just need to get through it. The thing is I’m a paradox and the thought of “normal” scares me too.

To keep in contact please feel free to use the comments or Twitter, Facebook or Instagram.

Therapy 2021: Session 1

Date of session: 05/01/2021

Please be aware that some of the content may be triggering. Please take care πŸ’š

Today was the first session of the new year after having a two week break. Its been a hectic break that has brought up a lot of issues.

Before Christmas it was decided that I would try and stop self harming. I haven’t self harmed since the day before our last session on the 16th December 2020. That means I havent self harmed for three weeks. She was pleased with this. I have struggled with the anxiety this has brought me.

With an OCD element to my self harm, it means stopping creates anxiety especially surrounding the health of those who are special to me. I believe if I don’t harm myself they will get ill. This has been tested greatly as my mum became unwell and was hospitalised only days after stopping. My friends son has also been unwell and this has added anxiety of whether I’ve caused his illness.

Within the session today we discussed this and did an analysis of all the times my mum has been unwell and whether my self harming behaviour could of been related. Obviously, when you look at it rationally, it turned out it was just a 50/50 chance. Rationally my self harm wasn’t having an effect. Also she pointed out that I was trying to manipulate the facts to fit with my thoughts or as she put it “your OCD”. It has given me a lot to consider. I can see the rationality but believing it is hard.

We also did a questionnaire to start working towards trauma therapy. As I have experienced dissociation she wanted to see how it effects me. The questionnaire we did was called the DES or Dissociative Experience Scale. It was interesting to go through as it made me see that maybe some things I experience are dissociation rather than normal. I didn’t get the results today but will discuss next session.

I don’t know what the sessions ahead will involve but I’m sure they won’t be easy. Thanks for all the support I get. I feel I’m learning a lot.

Covid Christmas

Christmas has come around again and this year is going to be different. A lot of people may be separated from those they normally spend this time of year with. This may be a blessing for some but awful for others who may feel lonely. The pressure of Christmas to be good is still there too.

This post is just going to be some things that may be useful to know about and some other things to maybe consider. A lot will be UK based as that’s where I am but if you have something you wish to add feel free to use the comments so others can see it.

The first think I’m going to share is a hash tag on twitter, to help those who are feeling lonely or struggling with Christmas. It was set up by the wonderful comedian Sarah Millican a few years ago and has been very popular. The hash tag is #joinin. Everyone is able to connect via the hash tag and hopefully reach out to each other. As it’s on Twitter you can use it from anywhere in the world.

For a lot of people money has been tight this year with lack of work or losing jobs. If you’re struggling don’t feel you have to give a gift. And if you want to don’t worry about going expensive. Gifts, if able to be given, should not be about reciprocity. I give because I want to make people happy, not to receive something in return. I’m sure whoever it is you want to gift something too would rather you were able to manage to live than give them something and struggle. If they wouldn’t then they don’t deserve a gift (I know this is different and harder with children and I apologise for not having suggestions for this). Also if you want to give why not spread it out so they get a surprise in January?

In the UK if you need someone to talk to you can contact the Samaritans on 116 123. They are available at any time though lines may be busy. This doesn’t mean they won’t talk to you so please hang on. I know people who have found them very useful to talk to. There are crisis lines available in most countries and you can find some of these via the menu on here.

If you don’t feel safe mixing with other people during this time then remember you are allowed to say you don’t want to. If it helps to make an excuse then that’s fine. You have no reason to feel guilty for putting yourself first. You are important. I know this is easier said than done, I really do, but it’s not selfish to put yourself first.

Self care can go by the wayside sometimes during busy periods but this is when it is most needed. If you can, try and do one bit of self care each day. It doesn’t have to be huge and may be something you’re already doing. Taking note of it will show yourself that you are worth looking after. It can be as simple as having a shower (which isn’t always simple I know) or having some water. You are worthy of being looked after.

For those who have an eating disorder, Christmas can create all number of challenges. I’m no expert on this but in the UK the charity Beat will be available for support everyday from 4pm to 9pm. There is also information on their website about things to consider at Christmas and their support services.

These are just a few things that may help. As I said at the top of the post if you have a useful resource then please add it to the comments or you can share with me via Twitter, Facebook or Instagram and I will try and get it shared. This means if you’re looking for something I haven’t shared it may be worth checking the comments or one of these places.

Please take care of yourselves this Christmas. You are all important and awesome. Be kind πŸ’š

Poinsettia Drawing by myself. There is a meaning to this flower. For more information look here.

Therapy 2020: Session 16

Date of session: 16/12/2020

Please be aware that some of the content may be triggering. Please take care πŸ’š

Today was my last session of 2020. It was also meant to be the last session of this course of therapy but that has changed and will be now continuing in the new year.

Yet again the anticipation of the session was overwhelming. In all honesty I’ve just felt incredibly tired since last week and no idea what else I have felt. I’ve not really had the time to investigate what I’ve been feeling either.

Today we looked again at the stopping of self harm. To do this we looked again at the motives behind it and how I feel when I try to stop. The huge anxiety it gives me. This made her more sure this was now an OCD behaviour. We looked at intrusive and obsessional thoughts and how they relate to my thought patterns. I did get a little frustrated that I wasn’t being understood.

Because of looking at this as an OCD behaviour it has meant we are going to look at a certain way of combating this. I think it was called habituation and changing the way I see it from a need to a want. We looked at what is classed as a need and what is classed as a want. It did leave me feeling guilty about my self harm. There will also involve a behaviour experiment about what might happen if I don’t act on the thoughts.

Part of the habituation means giving up the self harm and riding out the urge and the anxiety it causes. This feels scary and my anxiety started to creep up just talking about this. It was edging on panic. The thought of losing the self harm is scary. I’m terrified. I have to log everything about how I feel, what I think, what I do to distract/help myself and how long the anxiety lasts. Apparently anxiety shouldn’t last more than 40 minutes. This is not my experience but we shall see.

This time of year is hards for me. Part of me wants to say this isn’t the right time to stop but is it just another excuse? I’m dreading later on when I don’t do it. Will I just be a failure either way?

I have two weeks to see how I go. Two weeks until another session. I hope not to be a burden to others. I’m hoping I don’t compensate with other behaviours I use to ease anxiety. We shall see.