So with diagnosis you think the next step is treatment but oh no there is an endless round of tests and appointments to deal with. And it’s stressful for all involved.
A lot of these appointments and tests happen at the last minute so it is extremely hard to plan things around them. Things get changed at the last minute and the term chaotic is very apt.
For someone who needs routine and control this has been extremely hard for me to deal with. It’s not easy for anyone but this has added to the stressfulness of the situation. I can feel the anxiety in me about a change in routine. It’s selfish I know. Or that’s what I’m telling myself. What’s my anxiety to my mum’s cancer?
Having a lack of control over the situation and life in general leads me back to my reliable coping mechanisms. Not good ones. Self harm is back. And honestly I have no shame about it. I know I need better ways to cope. But currently don’t have the time.
For anyone going through this, how did you cope with the appointments? My phone calendar has never looked so full and I think that is the only thing giving me any sense of control, having all the dates in there.
My mum’s cancer was an incidental finding. We had no suspicions that she may have cancer. There were no obvious signs (though looking back we have picked some out). It was far off the radar. I don’t know if this made it easier or harder to deal with. I have no prior experience of anyone I know getting cancer. But it was tough.
Mum went into hospital before Christmas with an inflamed gallbladder. She had antibiotics and came home. About six weeks later at the beginning of February 2021 she had a reoccurrence of the inflamed gallbladder and so they decided to remove it in an emergency surgery. It was then that they found something. On her liver were lesions. Tumours. They took biopsies. Then we had to wait for the confirmation of cancer. They knew it was. It couldn’t be anything else. But we didn’t. So I grasped that tiny bit of hope. Hung on to it tight.
Within a week she was back for the results. It was, surprise, surprise, cancer. A rare one. Slow growing. Treatable. Neuroendocrine cancer. That’s what they told us then. There was still hope. But I dissolved. That day I sobbed for an hour. Mum was meant to be isolating after exposure to covid while on the ward but screw that, I hugged her. Then the guilt set in.
To understand this guilt means explaining that in my therapy I’d been working to stop self harming. I had been using as an OCD type compulsion to stop people getting ill. I’d been told it had no effect on them not getting ill. Then this happened. I’d made my mum get cancer. I even told my dad it was my fault. The guilt overtook me. I had ended the therapy by then ahead of a new group but all I wanted was to email the psychologist and tell her she’d made me give my mum cancer. Yup, totally irrational. Or that’s what I’m told. I bounce back and forwards still.
With the diagnosis came a lot of emotions. Emotions I didn’t understand. Emotions that were set to overwhelm me along with other people’s. So I pushed mine down. From the day after the diagnosis I didn’t cry for a long while. I threw myself into the practical. I didn’t feel anything. I totally blotted out my feelings. I had enough to overwhelm me with other people’s emotions. Those had a name though as people could tell me them. My own I can’t name.
So diagnosis was stage one of the whole cancer chaos. The start of the chaotic world it brings. And beginning it all in the midst of a pandemic has brought challenges as well. Mum was on her own for the diagnosis as at our hospital appointments have to be attended alone. I think that has hurt her a lot. I don’t know though.
So from diagnosis comes many more tests and appointments. These I will discuss in another blog post. I think I thought diagnosis would be the hardest part. How wrong I’ve been.
If you want to share any experiences, thoughts or resources feel free to use the comments or my Twitter, Facebook or Instagram accounts linked to this blog.
Please be aware that some of the content may be triggering. Please take care 💚
About six weeks ago (or longer, the days are all merging) my world was hit by the news that my mum has cancer. It’s something I’ve been dealing with on top of coping with my mental illness. Therefore I thought I’d use my blog as a way of recording how I cope (or not) with everything that comes from living with someone with cancer. And not just anyone living with someone with cancer but someone with a prior mental illness. I know bits will overlap with everyone who supports someone with cancer but there are bits that I think I’m finding harder due to my diagnosis. Maybe not… But this will be my way to explore it.
I’m planning to set this up on it’s own page of my blog so it will be together with other information or support as well. And it will all be in one place.
My plan is that I will be as honest as I can be. That I will look at the good, the bad and the ugly. This may mean there is triggering topics discussed so please be careful. As always I will put a trigger warning at the top.
So post one will hopefully be up shortly (once I’ve written it) but I don’t think I will keep these posts to a schedule as life is already chaotic. I also still want to write about other areas of mental health and illness too, this is just an add on.
As always if you want to share or ask questions feel free to use the comments or my Twitter, Facebook or Instagram accounts.
Please be aware that some of the content may be triggering. Please take care 💚
Last week after a while of not feeling anything or pushing emotions down I was suddenly overwhelmed with them. It is an experience I know many people with a mental illness feel at times, especially those who have a diagnosis of Borderline Personality Disorder (BPD).
I don’t understand my emotions most of the time. Identifying them is an extremely difficult thing for me. When they overwhelm me this is harder to do and harder to deal with as well. People will ask what’s wrong or what you’re feeling and not being able to explain it is so hard to deal with and seems to add something into the emotions that makes it all the worse. I feel I just want to be a “normal” person for a while.
Those with a BPD diagnosis find emotions are heightened. They are often described as being emotionally like third degree burns victims without an emotional skin. It’s like touching wounds when we feel emotions. The pain of them is strong and this can be felt physically in the body. And by god is it painful at the extremes. When most people would have a small emotional response, ours tends to be more intense or bigger. Therefore when a person without the diagnosis has an event that causes them extreme emotional pain, well for those who have a diagnosis of BPD it is just unbearable.
When the emotions overwhelmed me I just wanted to tear my skin off. I wanted to hurt myself to an extreme extent. I wanted to escape it all. Death felt like the best idea but I felt trapped as it wasn’t an option. This added to the distress. The hatred for myself is strong. It’s always strong but in that moment it was extreme. It was unbearable and I could not even work out what I was feeling.
This happens more often than people realise. A lot of the time I just hide away. My friends cope with a lot. I feel sorry for them. I hate what I do to them. They deserve better. I try my hardest to not inflict myself on them but in the moment it’s harder. This isn’t the healthiest way to cope.
I don’t have much advice for coping. Dialectical Behavioural Therapy (DBT) offers some skills for dealing with distress. These include the TIPP skills and STOP skills that are detailed in the images below. However it can be hard to remember to do this when the emotions are so high. It’s like they are blinding. It could be useful to let someone close to you know about the skills so they can remind you of them.
If you have any other tips for coping with overwhelming emotions then feel free to share in the comments or on Twitter, Facebook or Instagram.